Drama on rare diseases played by patients, relatives staged in Beijing

    Source: Xinhua| 2019-02-28 21:18:19|Editor: ZX
    Video PlayerClose

    (FOCUS)CHINA-BEIJING-RARE DISEASE-AWARENESS-DRAMA (CN)

    Director Liang Wanyun (1st R) gives instructions to rare disease patients on their performance in "Rare Hug", a drama on rare diseases, at the Illness Challenge Foundation office in Beijing, capital of China, Feb. 24, 2019. "Rare Hug," a Chinese drama on rare diseases, was staged at the Beijing Tianqiao Performing Arts Center Wednesday evening to mark the 12th Rare Disease Day, which falls on Feb. 28, 2019 under the theme "Bridging Health and Social Care." The drama was played by rare disease patients in collaboration with their relatives. Assisted by two volunteer directors, the cast took part in a three-day workshop as well as rehearsals that lasted for two days, before presenting their real-life stories to the audience. Chen Meiping, one of the directors, has devoted herself to the public theatre and related arts since 2005. In late 2018, she worked with Yi'ou Wang, secretary-general of Illness Challenge Foundation, to come up with the idea of telling stories of rare disease patients with a collaborative drama. Before meeting the rare disease patients who volunteered to act in her drama, Chen was not so confident in the final result because they had only limited time for proper training. Chen was later surprised by the collaborating patients' readiness to perform and their desire to share their stories with others. "I am reassured by that desire," said Chen. "It is as if they can act themselves out immediately after they are up on the stage." The other director, Liang Wanyun, had been worried that the patients were amateurs who had not ever performed in a real drama and not sure whether they could go through the acting training in just three days. Yin Yuanyue, a 29-year-old volunteer actress in the drama who is diagnosed with muscular dystrophy, called for increased social awareness of the rare disease patient group. "What I am seeking is a sort of presence, as an actress for instance, that can act as encouragement for fellow patients who are still too afraid to reach for the outside world," she said. "It is particularly rare for a rare disease patient to rise to the stage and speak out for ourselves," said Pan Longfei, a 30-year-old volunteer actor who is diagnosed with Kallmann Syndrome. Subject to long-time isolation and misunderstanding by those around him, Pan hopes his performance could call on fellow patients to be conscious of their true selves and accept life as it is. Although rare diseases are found in a very small number of patients, most of them are incurable. Only five percent of rare diseases can be treated with medicine. About 80 percent of the 6,000 to 8,000 rare diseases known to us are gene-related, with more than 50 percent of them appearing in early childhood. According to World Health Organization (WHO) statistics, rare diseases affect a population of about 400 million worldwide, which means that for every 15 people there is one rare disease patient. Whereas in China, the number of people suffering from rare diseases is estimated to top 20 million. There are more than 100 rare disease patient support groups set up in accordance with disease categories in the country. (Xinhua/Jin Liwang)

       Prev 1 2 3 4 5 6 7 8 9 10 Next   >>|

    KEY WORDS:
    EXPLORE XINHUANET
    010020070750000000000000011100001378582011
    主站蜘蛛池模板: 羞羞漫画小舞被黄漫免费| 亚洲人交性视频| 6080午夜乱理伦片| 日韩视频一区二区| 国产91在线|日韩| caoporn国产精品免费| 欧美最猛黑人xxxx黑人猛交| 国产无套乱子伦精彩是白视频| 久久久噜久噜久久gif动图| 精品一区二区三区水蜜桃| 国产精品高清一区二区三区| 中文字幕第4页| 污视频网站免费在线观看| 国产XXXX99真实实拍| 亚洲自国产拍揄拍| 无码人妻精品丰满熟妇区| 亚洲人成网站在线观看青青| 疯狂做受XXXX国产| 国产激情视频一区二区三区| 久久99久久99精品免观看| 狠狠色综合网久久久久久| 国产爆乳无码一区二区麻豆 | 老司机aⅴ在线精品导航| 国产精品亚洲欧美日韩区| 久久99国产一区二区三区| 欧美一级视频在线| 亚洲黄色一级毛片| 黄网站免费观看| 婷婷五月综合缴情在线视频| 久久精品国产亚洲av麻豆色欲| 欧美精品blacked中文字幕| 免费观看a黄一级视频| jizz.日本| 性欧美激情videos| 亚洲国产日韩欧美一区二区三区| 色综合久久久久久久久五月| 国产福利在线观看极品美女| 三年片在线观看免费观看大全中国| 欧美成a人片在线观看| 四虎影片国产精品8848| 91九色视频无限观看免费 |