Drama on rare diseases played by patients, relatives staged in Beijing

    Source: Xinhua| 2019-02-28 21:18:19|Editor: ZX
    Video PlayerClose

    (FOCUS)CHINA-BEIJING-RARE DISEASE-AWARENESS-DRAMA (CN)

    Rare disease patients take the curtain call after their performance in "Rare Hug", a drama on rare diseases, at Beijing Tianqiao Performance Arts Center in Beijing, capital of China, Feb. 27, 2019. "Rare Hug," a Chinese drama on rare diseases, was staged at the Beijing Tianqiao Performing Arts Center Wednesday evening to mark the 12th Rare Disease Day, which falls on Feb. 28, 2019 under the theme "Bridging Health and Social Care." The drama was played by rare disease patients in collaboration with their relatives. Assisted by two volunteer directors, the cast took part in a three-day workshop as well as rehearsals that lasted for two days, before presenting their real-life stories to the audience. Chen Meiping, one of the directors, has devoted herself to the public theatre and related arts since 2005. In late 2018, she worked with Yi'ou Wang, secretary-general of Illness Challenge Foundation, to come up with the idea of telling stories of rare disease patients with a collaborative drama. Before meeting the rare disease patients who volunteered to act in her drama, Chen was not so confident in the final result because they had only limited time for proper training. Chen was later surprised by the collaborating patients' readiness to perform and their desire to share their stories with others. "I am reassured by that desire," said Chen. "It is as if they can act themselves out immediately after they are up on the stage." The other director, Liang Wanyun, had been worried that the patients were amateurs who had not ever performed in a real drama and not sure whether they could go through the acting training in just three days. Yin Yuanyue, a 29-year-old volunteer actress in the drama who is diagnosed with muscular dystrophy, called for increased social awareness of the rare disease patient group. "What I am seeking is a sort of presence, as an actress for instance, that can act as encouragement for fellow patients who are still too afraid to reach for the outside world," she said. "It is particularly rare for a rare disease patient to rise to the stage and speak out for ourselves," said Pan Longfei, a 30-year-old volunteer actor who is diagnosed with Kallmann Syndrome. Subject to long-time isolation and misunderstanding by those around him, Pan hopes his performance could call on fellow patients to be conscious of their true selves and accept life as it is. Although rare diseases are found in a very small number of patients, most of them are incurable. Only five percent of rare diseases can be treated with medicine. About 80 percent of the 6,000 to 8,000 rare diseases known to us are gene-related, with more than 50 percent of them appearing in early childhood. According to World Health Organization (WHO) statistics, rare diseases affect a population of about 400 million worldwide, which means that for every 15 people there is one rare disease patient. Whereas in China, the number of people suffering from rare diseases is estimated to top 20 million. There are more than 100 rare disease patient support groups set up in accordance with disease categories in the country. (Xinhua/Jin Liwang)

    KEY WORDS:
    EXPLORE XINHUANET
    010020070750000000000000011100001378582011
    主站蜘蛛池模板: 男女污污在线观看| 奇米影视777色| 日日碰狠狠添天天爽无码| 亚洲精品99久久久久中文字幕| 视频aavvmm国产野外| 国产精品视频视频久久| 一级毛片在线不卡直接观看| 曰本一区二区三区| 亚洲综合久久精品无码色欲| 色噜噜狠狠狠色综合久| 国产精品免费久久久久影院 | 丰满老熟妇好大bbbbb| 欧美亚洲国产视频| 人妻精品久久久久中文字幕| 色噜噜狠狠色综合欧洲selulu| 国产精品三级在线观看无码| aⅴ在线免费观看| 成人黄页网站免费观看大全 | 蹂躏国际女刑警之屈服| 国产精品爽爽影院在线| xxxxx性bbbbb欧美| 日本aⅴ日本高清视频影片www| 亚洲va国产日韩欧美精品 | 国产精品无码专区在线播放 | 一本一道久久综合久久| 日本一道本高清| 亚洲AV无码有乱码在线观看| 毛片网站是多少| 免费观看午夜在线欧差毛片| 豪妇荡乳1一5白玉兰免费下载| 国产精品99久久久精品无码| 97久久精品午夜一区二区| 婷婷色香五月激情综合2020| 久久久久人妻精品一区三寸| 最近中文字幕高清免费大全8| 亚洲欧美精品一中文字幕| 白嫩光屁股bbbbbbbbb| 噼里啪啦国语在线播放| 青青在线国产视频| 国产无遮挡又黄又爽高潮| 2019国产开嫩苞视频|