Drama on rare diseases played by patients, relatives staged in Beijing

    Source: Xinhua| 2019-02-28 21:18:19|Editor: ZX
    Video PlayerClose

    (FOCUS)CHINA-BEIJING-RARE DISEASE-AWARENESS-DRAMA (CN)

    Rare disease patients Cheng Liting (R) and Huang Jing hug each other after their performance in "Rare Hug", a drama on rare diseases, at Beijing Tianqiao Performance Arts Center in Beijing, capital of China, Feb. 27, 2019. "Rare Hug," a Chinese drama on rare diseases, was staged at the Beijing Tianqiao Performing Arts Center Wednesday evening to mark the 12th Rare Disease Day, which falls on Feb. 28, 2019 under the theme "Bridging Health and Social Care." The drama was played by rare disease patients in collaboration with their relatives. Assisted by two volunteer directors, the cast took part in a three-day workshop as well as rehearsals that lasted for two days, before presenting their real-life stories to the audience. Chen Meiping, one of the directors, has devoted herself to the public theatre and related arts since 2005. In late 2018, she worked with Yi'ou Wang, secretary-general of Illness Challenge Foundation, to come up with the idea of telling stories of rare disease patients with a collaborative drama. Before meeting the rare disease patients who volunteered to act in her drama, Chen was not so confident in the final result because they had only limited time for proper training. Chen was later surprised by the collaborating patients' readiness to perform and their desire to share their stories with others. "I am reassured by that desire," said Chen. "It is as if they can act themselves out immediately after they are up on the stage." The other director, Liang Wanyun, had been worried that the patients were amateurs who had not ever performed in a real drama and not sure whether they could go through the acting training in just three days. Yin Yuanyue, a 29-year-old volunteer actress in the drama who is diagnosed with muscular dystrophy, called for increased social awareness of the rare disease patient group. "What I am seeking is a sort of presence, as an actress for instance, that can act as encouragement for fellow patients who are still too afraid to reach for the outside world," she said. "It is particularly rare for a rare disease patient to rise to the stage and speak out for ourselves," said Pan Longfei, a 30-year-old volunteer actor who is diagnosed with Kallmann Syndrome. Subject to long-time isolation and misunderstanding by those around him, Pan hopes his performance could call on fellow patients to be conscious of their true selves and accept life as it is. Although rare diseases are found in a very small number of patients, most of them are incurable. Only five percent of rare diseases can be treated with medicine. About 80 percent of the 6,000 to 8,000 rare diseases known to us are gene-related, with more than 50 percent of them appearing in early childhood. According to World Health Organization (WHO) statistics, rare diseases affect a population of about 400 million worldwide, which means that for every 15 people there is one rare disease patient. Whereas in China, the number of people suffering from rare diseases is estimated to top 20 million. There are more than 100 rare disease patient support groups set up in accordance with disease categories in the country. (Xinhua/Zhang Yuwei)

    KEY WORDS:
    EXPLORE XINHUANET
    010020070750000000000000011100001378582011
    主站蜘蛛池模板: 99久久99这里只有免费费精品 | 你是我的城池营垒免费观看完整版 | 直接观看黄网站免费视频| 国产精品久久国产三级国不卡顿 | 亚洲国产日韩在线| 精品人妻久久久久久888| 女人体1963毛片a级| 久久综合九色综合欧美就去吻| 色欲欲WWW成人网站| 国产精品网站在线观看免费传媒 | 一本大道高清香蕉中文大在线| 最近中文字幕大全免费版在线| 伊伊人成亚洲综合人网7777| 蜜臀AV在线播放| 国产精品久久久久免费视频| chinese乱子伦xxxx视频播放| 无遮挡无删动漫肉在线观看| 亚洲av永久无码精品网站| 肌肌对肌肤肤30分钟软件大全免费| 天天做天天添天天谢| 久久不见久久见免费视频7| 狠狠色综合网站久久久久久久 | 四虎影院最新域名| 成人自拍小视频| 国产精品高清一区二区三区 | 一级做a爰片性色毛片男| 欧美性xxxx极品高清| 国产凌凌漆国语| 4399影视免费观看高清直播| 好男人看片在线视频观看免费观看| 亚洲人成精品久久久久| 男女一进一出猛进式抽搐视频| 国产99久9在线视频| 91精品国产高清久久久久久| 成人a视频片在线观看免费| 久久天天躁夜夜躁狠狠躁2015 | 中文字幕在线欧美| 日韩国产有码在线观看视频| 亚洲另类激情专区小说图片| 波多野42部无码喷潮在线| 国产亚洲视频在线|